Identity area
Reference code
MS 327
Title
Brittle Bone Society Archives
Date(s)
- 1949 - 2022 (Creation)
Level of description
Collection
Extent and medium
64 boxes
Context area
Name of creator
(1968 - Present)
Administrative history
The Brittle Bone Society (BBS) was founded in Dundee in 1968 by Margaret Grant and is the only UK-wide charity organisation set up to provide support to people affected by the bone condition, Osteogenesis Imperfecta (OI). The Society works closely with specialist medical units and other professionals from across the United Kingdom, plays a crucial role in promoting research into the condition and offers practical support, advice and encouragement to patients and their relatives. The Society continues to operate from its Dundee headquarters and currently has a membership in the region of 1000.
Name of creator
(June 29 1933-December 2 2020)
Biographical history
Margaret Grant was the founder of the Brittle Bone Society, the UK’s leading charity for the support of people with the rare bone condition Osteogenesis Imperfecta (OI).
She received an honorary doctorate from Dundee University in 2018, the year of the charity’s 50th anniversary. She was also named Dundee Citizen of the Year in 1975. Other achievements included the OIF (Osteogenesis Impefercta Foundation) award in 1982 for hosting the first international conference for people with OI and the Tunstall Telecoms National caring award in 1988. She was awarded the MBE in 1989
Margaret was married and had one daughter
Source: https://www.thecourier.co.uk/fp/news/dundee/1787443/obituary-brittle-bone-campaigner-margaret-grant/
She received an honorary doctorate from Dundee University in 2018, the year of the charity’s 50th anniversary. She was also named Dundee Citizen of the Year in 1975. Other achievements included the OIF (Osteogenesis Impefercta Foundation) award in 1982 for hosting the first international conference for people with OI and the Tunstall Telecoms National caring award in 1988. She was awarded the MBE in 1989
Margaret was married and had one daughter
Source: https://www.thecourier.co.uk/fp/news/dundee/1787443/obituary-brittle-bone-campaigner-margaret-grant/
Repository
Archival history
The records were created, received and managed by the Brittle Bone Society (BBS) as part of day-to-day business activity. They also includes materials collected by prominent people associated with the society.
Content and structure area
Scope and content
Correspondence relating to the Society's history; Minute books and papers; Financial record; Records relating to various national and international conferences; Records relating to Society fundraising events; Brochures, pamphlets, and other literature; Photographs; Promotional objects and equipment
Accruals
Expected
System of arrangement
Usually chronological within series.
Conditions of access and use area
Conditions governing access
Open for consultation subject to preservation requirements. Access must also conform to the restrictions of the Data Protection Act (2018), General Data Protection Regulation (GDPR, 2018) and any other relevant legislation or restrictions. Clinical information is closed for 100 years.
Conditions governing reproduction
Reproduction is available subject to preservation requirements. Charges may be made for this service, and copyright and other restrictions may apply; please check with the Duty Archivist.
Language of material
Script of material
Language and script notes
Physical characteristics and technical requirements
Paper, photographs, negatives and objects.
Finding aids
Allied materials area
Existence and location of originals
The records are original.
Existence and location of copies
Related units of description
Notes area
Alternative identifier(s)
Access points
Place access points
Name access points
Genre access points
Description control area
Description identifier
MS 327
Rules and/or conventions used
Description compiled in line with the following standards: International Council on Archives, ISAD(G) General International Standard Archival Description; International Council on Archives, ISAAR(CPF): International Standard Archival Authority Record for Corporate Bodies, Persons, and Families; National Council on Archives, Rules for the Construction of Personal, Place and Corporate Names, 1997
Status
Catalogued
Dates of creation revision deletion
Language(s)
- English