Brittle Bone Society Archives
- c1950s - 2012 (Creation)
Level of description
Extent and medium
c 30 boxes
Name of creator
The Brittle Bone Society (BBS) was founded in Dundee in 1968 by Margaret Grant and is the only UK-wide charity organisation set up to provide support to people affected by the bone condition, Osteogenesis Imperfecta (OI). The Society works closely with specialist medical units and other professionals from across the United Kingdom, plays a crucial role in promoting research into the condition and offers practical support, advice and encouragement to patients and their relatives. The Society continues to operate from its Dundee headquarters and currently has a membership in the region of 1000.
Content and structure area
Scope and content
Correspondence relating to the Society's history; Minute books and papers; Financial record; Records relating to various national and international conferences; Records relating to Society fundraising events; Photographs
System of arrangement
Usually chronological within series.
Conditions of access and use area
Conditions governing access
Open for consultation subject to preservation requirements. Access must also conform to the restrictions of the Data Protection Act (2018), General Data Protection Regulation (GDPR, 2018) and any other relevant legislation or restrictions. Clinical information is closed for 100 years.
Conditions governing reproduction
Reproduction is available subject to preservation requirements. Charges may be made for this service, and copyright and other restrictions may apply; please check with the Duty Archivist.
Language of material
Script of material
Language and script notes
Physical characteristics and technical requirements
Paper, photographs, negatives and objects.
Allied materials area
Existence and location of originals
The records are original.
Existence and location of copies
Related units of description
Place access points
Name access points
Genre access points
Description control area
Rules and/or conventions used
Description compiled in line with the following standards: International Council on Archives, ISAD(G) General International Standard Archival Description; International Council on Archives, ISAAR(CPF): International Standard Archival Authority Record for Corporate Bodies, Persons, and Families; National Council on Archives, Rules for the Construction of Personal, Place and Corporate Names, 1997
Dates of creation revision deletion