Collection MS 327 - Brittle Bone Society Archives

Identity area

Reference code

MS 327

Title

Brittle Bone Society Archives

Date(s)

  • c1950s - 2012 (Creation)

Level of description

Collection

Extent and medium

c 30 boxes

Context area

Name of creator

(1968 - Present)

Administrative history

The Brittle Bone Society (BBS) was founded in Dundee in 1968 by Margaret Grant and is the only UK-wide charity organisation set up to provide support to people affected by the bone condition, Osteogenesis Imperfecta (OI). The Society works closely with specialist medical units and other professionals from across the United Kingdom, plays a crucial role in promoting research into the condition and offers practical support, advice and encouragement to patients and their relatives. The Society continues to operate from its Dundee headquarters and currently has a membership in the region of 1000.

Name of creator

(June 29 1933-December 2 2020)

Biographical history

Margaret Grant was the founder of the Brittle Bone Society, the UK’s leading charity for the support of people with the rare bone condition Osteogenesis Imperfecta (OI).
She received an honorary doctorate from Dundee University in 2018, the year of the charity’s 50th anniversary. She was also named Dundee Citizen of the Year in 1975. Other achievements included the OIF (Osteogenesis Impefercta Foundation) award in 1982 for hosting the first international conference for people with OI and the Tunstall Telecoms National caring award in 1988. She was awarded the MBE in 1989
Margaret was married and had one daughter
Source: https://www.thecourier.co.uk/fp/news/dundee/1787443/obituary-brittle-bone-campaigner-margaret-grant/

Archival history

The records were created, received and managed by the Brittle Bone Society (BBS) as part of day-to-day business activity. They also includes materials collected by prominent people associated with the society.

Content and structure area

Scope and content

Correspondence relating to the Society's history; Minute books and papers; Financial record; Records relating to various national and international conferences; Records relating to Society fundraising events; Photographs

Accruals

Expected

System of arrangement

Usually chronological within series.

Conditions of access and use area

Conditions governing access

Open for consultation subject to preservation requirements. Access must also conform to the restrictions of the Data Protection Act (2018), General Data Protection Regulation (GDPR, 2018) and any other relevant legislation or restrictions. Clinical information is closed for 100 years.

Conditions governing reproduction

Reproduction is available subject to preservation requirements. Charges may be made for this service, and copyright and other restrictions may apply; please check with the Duty Archivist.

Language of material

Script of material

Language and script notes

Physical characteristics and technical requirements

Paper, photographs, negatives and objects.

Finding aids

Allied materials area

Existence and location of originals

The records are original.

Existence and location of copies

Related units of description

Related descriptions

Notes area

Alternative identifier(s)

Access points

Subject access points

Place access points

Name access points

Genre access points

Description control area

Description identifier

MS 327

Rules and/or conventions used

Description compiled in line with the following standards: International Council on Archives, ISAD(G) General International Standard Archival Description; International Council on Archives, ISAAR(CPF): International Standard Archival Authority Record for Corporate Bodies, Persons, and Families; National Council on Archives, Rules for the Construction of Personal, Place and Corporate Names, 1997

Status

Catalogued

Dates of creation revision deletion

Language(s)

  • English

Script(s)

Sources

Accession area

Related subjects

Related people and organizations

Related genres

Related places